Sunday, November 24, 2013

Going a different route


I've been wanting to update y'all on recent events but my goodness it's hard to find the time to sit down and type out a blog entry.  As you know I started my IVF medication back on October 26th.  The plan was for me to be on the stimulation medication for 10 to 12 days then do the egg retrieval.  Well, things did not work out as planned.  We knew going into this cycle that I am a carrier of Fragile X and that I have a very low ovarian reserve.  For those of you not familiar that means that I do not have many eggs left.  Trying to make a long story short the 10th day of medication my body was just not responding really at all. My doctor decided to cancel the cycle.  I knew that I had a low ovarian reserve but I was still taken back by just how bad it really is. It woke me up to the fact that I really might not have any more babies our my own.  It was heartbreaking.  After following up with my doctor we decided to try again with a different medication and a competely different approach.  When I left the clinic I was comfortable with that choice.  But, as I kept thinking about it and talking to God and John we think that the best option for us is to use an egg donor.  A whaaaat? Yes, an egg donor.  Ummm…Lindsay…what's an egg donor? Well, an egg donor is exactly that.  We use another girls eggs to make a baby.  So, we have gone through the egg donor selection process (build a baby if you will :)) and found a local girl we want to use.  We got to look at multiple profiles and see information on their health, education, pictures of them growing up, hair color, eye color, race all of that.  We made our selection and now we are currently waiting for the girl to contact the clinic to confirm her availablility.  

At first we thought the egg donor option was kinda strange and..who are we kidding it kinda is but we know that we will most likely get a lot of eggs.  The baby will be half her and half John but the baby grows in my belly. I get a little sad that I will never have a little "Lindsay" per se or that the baby won't have the dominating trait of the "Derringer" chin but whether we have a little girl or another precious boy that baby will be ours.  The baby will grow inside me, knit together in my womb and we will love and raise that baby.  Another great thing about using a donor is that we will completely wipe out the Fragile X gene from our family. So, we wait.  We wait on the donor and then begin the couple month egg donor process. I will do my best to keep you updated. 

It's just another day in the life of the Brandon's journey to baby #2. 

Love y'all! 

Interested in becoming an egg donor and helping a family's dream come true of having a baby?  Read about it here

Friday, October 25, 2013

IVF Journey

Things are really going to start picking up for us and our very first (hopefully only) IVF round.  For those of you not familiar IVF stands for Invitro Fertilization. For those of you who do not know, me and John decided to try for a baby using IVF due to the fact that I am a carrier of the Fragile X gene. Read and learn about Fragile X here.With that comes a 50 percent chance that I could pass that gene on to another baby.  That percentage is just way to high for us. 

Lets see...we started this whole process back in May.  We met the doctor and nurses who I really love.  They are all so sweet and are always there to answer any questions I may have. Since we have chosen to do genetic testing we had to submit DNA samples to the lab doing my workup.  The labs job was to find where in my DNA the Fragile X gene is located.  That whole process took 16 weeks.  Now that that part is complete they will use that information to locate the Fragile X gene in the collected embryos. It's all very scientific but it's really up to God. There has been a ton of waiting involved in this process.  After having lots of blood drawn, tests, and two ultrasounds later, we are finally ready to move forward.  

Today I received my Fed Ex delivery of my fertility medications. For all the money that this medicine cost I expected a ginormous box. Not so much.  Here is the box I received this morning. 


There is medicine inside to cooler


So anyway, starting tomorrow (Saturday) morning I start my shots.  One shot in the morning and the second 12 hours later.  Then three days after that I start a second shot which is also twice a day. Here's the kicker...with the second med sometimes the syringe doesn't have all the medicine in it so I have to refill so that means some days I'll be giving myself 5 shots a day.  :-)  But really, even though I'm a bit nervous and am not looking forward to giving myself shots everyday it will all be worth it to end up with another precious little baby.  That is the goal here...to have a baby. 

I will be keeping y'all updated but really I'm asking for prayer.  Prayers that we get pregnant the first time around.  That all goes as smoothly as possible. Did we ever think that we would have to go through all of this to have a baby..? No, but we do and we're confident that God has a plan and will bless us with another bundle of joy. 

 


Sunday, August 18, 2013

Catch up...

Okay, seriously, it's been almost three months since I've done a blog post.  So much has happened since May 25th.  Where do I even begin? Ah yes...little Liam. As always he is a very busy boy which means I am a very busy momma.

Back in June I had signed Liam up for a Sertraline (Zoloft) trial. Supposedly it can help with behavior issues, OCD issues and language development in little ones with Fragile X.  The study takes place in Sacramento, CA starting in February 2014. Desperate for some changes in Liam, I thought I would ask his Pediatrician here in New Braunfels if she could go ahead and write the prescription for us.  I did not want to wait until February to start the medicine and then not knowing if we were in the real drug or the placebo.  The study is six months long.  Long story short...I did not want to wait another year before we find something that works for Liam.  Thankfully, his pediatrician wrote the prescription for us.  Liam has now been on Zoloft for almost four weeks. Is it a coincidence that Liam has started to make sounds on command...?  I don't know...maybe it's all the hard work we put in and he's now picking up on it?

It can take up to eight weeks for Zoloft to take full affect.  In the next month hopefully we see even more changes.

Last week Liam went to Neurologist to see what options we have to slow his brain down just a bit (ADHD).  He is a little on the hyper side and has very little focus.  We want Liam to get everything he can out of his therapy sessions and in order to do that he needs to be able to focus a bit more. We decided to give Zoloft the eight weeks and reevaluate in two months.  In the meantime, the doctor gave us some prescription options that I am researching.  Who knew all the medication out there! It can be very overwhelming.

Liam is starting school two times a week this fall.  Only for about three hours a day but it'll be good for him and me.  He'll get the structure he needs in a school setting. Liam seems to do very well with change so I'm not too concerned with him going to a new school. He's pretty laid back. Besides school twice a week he'll still be getting behavioral therapy, speech therapy and therapeutic horseback riding. He'll also be receiving speech, physical therapy and occupational therapy while at school. Whatever it takes right?!  I just know the more we do now the better he'll be when he's older.

Oh...and Liam is officially in a big boy bed.  He really loves his new bed! The transition has been fairly smooth. Sometimes I walk into his room with all his dresser drawers empty and books everywhere but hey..what can ya do?!

Goodbye crib

hello bed

As for me, I'm hanging in there.  The past couple months have been pretty rough for me when it comes to dealing with Liam.  A lot of emotions.  I have quite a few good days and some not so good days. I know that it is a process.  The process of grieving my baby boy.  I know it will get easier as time goes on.  Just trying to stay positive. I know that Liam will surprise us all with what he's going to do and what he'll become.  Even will all the Fragile X stuff, I'm grateful that Liam is a healthy, happy kiddo. I'm thankful for john who works so hard to make sure me and Liam always have everything we need and more. 


Saturday, May 25, 2013

Holland Cont.


I found this poem on another girls blog but I do not know who originally posted it. Of course it's touching as I deal everyday with the roller coaster of emotions of Liam and Fragile X and how it's changed our lives forever. I wonder if I will ever just feel okay with everything?  Some days are good and some not so much.  As me and John are in praying and waiting to see if we will blessed with another baby...I too wonder what it will be like for Liam to have a sibling. I think Liam will be a great big brother and it will be good for him to have a brother or a sister. To have a typically developing child....will it make me ache even more for Liam to be "typical"? To see what comes so easily for most kids that Liam has to work so incredibly hard at? Our sweet little Liam. I love you. 
Of course...
There are the days that I wouldn’t trade Holland for the world
The days that I stand in awe of the windmills’ quaint majesty
And marvel at the overwhelming beauty of the tulip fields
There are the days that I scoff at Italy
The days that I feel downright sorry for those who have never been to Holland
Never wondered at the beauty created by Rembrandt’s brush
What they are missing here, I tell myself
Poor souls!
How much richer they’d be for a visit someday
For a walk in these wooden shoes
**
And then there are the days that I look more closely at the Dutch landscape
The days that I see past the tulip fields to the mothers wringing their hands, waiting – always waiting
The days that I see the doctors – the specialists and therapists – everywhere it seems, filling the streets, doffing their caps as they move from one house to the next – an endless conveyor belt of service and need
There are the days that I see the siblings, struggling with dual citizenship in two dramatically different nations – neither of which they can fully claim as their own
There are the days that I can no longer smell the fragrance of the flowers for the stench of desperation and fear
The days that I send my girls off on the train, backpacks full with supplies for their daily trip to Italy
Knowing that only one of them speaks a word of Italian
Relying on a host of translators and guides to keep my youngest safe on such desperately foreign soil
There are the days that my heart simply breaks because I can’t make the whole world speak Dutch
There are the days that I watch the planes flying in – filled with mothers clutching their children, looking out the window, ready to point to the Spanish Steps and the Colosseum – knowing they’ll find out soon enough, that’s not where they are
There are the days when I wonder if my son even notices the windmills, or the tulips – if he knows there are Rembrandts here
Or if he simply wishes that he were in Rome
**
There are the days that I see my Holland for what it really is
A breathtakingly beautiful place
A place full of love and compassion
Freedom and camaraderie
And a place where children hurt and mothers’ hearts ache with the impotence of not being able to make it better
-Unknown-

Thursday, May 9, 2013

Happy Anniversary Babe

Four years ago today I married the man of my dreams.  Four years have gone by so fast and so much has happened within those four years.  A whole lot of of goods things, some not so good things but one thing is for certain....I'm still very much in love with my hubby. More in love with him today then ever before. John is so supportive and loving.  When I say supportive and loving..I really mean it.  Even through all my silliness and craziness he loves me the same.  I could not ask for more. Oh yeah...he's very handsome and an amazing daddy to Liam.  He loves Liam so much. Since having Liam I have learned to love John in so many new ways. Thank you babe for these four years.  Thank you for all the love, encouragement and security you give me. Heres to many more years filled with fun, laughter and adventure. I love you with all my heart.

I love our wedding pictures. I look at them often. Such a happy day. 







Thursday, April 18, 2013

Rain.

Thank you Lord for the rain this morning. There is a study by Dr. James McDonald called He Will Come to Us Like the Rain.  That thought is amazing.  I need a downpour! Makes me want to go outside and just stand in the rain.  I picture the rain just covering me up! Cover with your love Lord! Your grace and your mercy.

I wanted to take a few minutes and give an update on little Liam.  We had our first meeting at our elementary school yesterday.  Liam will be starting there in the fall.  The state offers a program that enables Liam to get free Occupational Therapy (OT), Physical Therapy and Speech Therapy (ST) while in a school setting.  It is called the PPCD Program which stands for Preschool Programs for Children with Disabilities. We had the opportunity to meet his teacher and see the school. They will be going on field trips and having lots of fun.  Liam will be going three days a week for 3 hours in the morning. Since Liam is turning three in July he ages out of the early intervenion program (ECI). Liam has been in ECI since 14 months old. It has been great and very helpful. Liam is growing up so we are moving on to bigger and better things.

Along with the PPCD Program Liam will still be receiving private OT, ST, and Behavioral Therapy.  So yes, busy busy busy.

I signed Liam up for the Mother's Day Out program at church for the summer.  He'll be going every Wednesday in June.  He LOVES church so it will be good for both him and me.

Even with our hectic schedule we still have plenty of time to play outside and do Liam things.  Liam has his own special way of playing.  He plays with things the way they were not intended.  We find it so funny. It's so Liam.

Tomorrow me and John head to our IVF appointment in Austin. Our last appointment had to be rescheduled.  It worked out better because John is able to come with me this time.  I will update y'all on how that appointment goes.

What's going on in your life?

Sweet Liam playing outside

 


Sunday, March 31, 2013

A little extra Easter present for Liam

I've been wanting to get an easel for Liam for some time now.  All the easels I've found were way over-priced and I was not completely in love with them.  I could not get myself to spend 150 dollars on an easel.  Did you know that Ikea has an easel for $14.99? Well they do!  You can get it here. The shipping was only $10.00. This easel comes in a natural wood color but I wanted something bright and fun for Liam's playroom.  So that's what I did. :-)


Here is what the easel looked like before. 


Tape the easel very well.  Tape all that you do not want spray painted. 


Viola!


I wanted the easel to be magnetic too so I got some magnetic primer.  It is a little pricey (almost 20 bucks) but it works. Once I put a few coats of magnetic primer I painted over it with some chalkboard paint. 


Here it is in Liam's playroom.  Easy, saved money and so fun!